Join Emma Fogartys Run to 40 and be part of a team with Colin Farrell to support everyone impacted by EB in Ireland
We are taking part in the Run to 40 Challenge so that everyone with skin as fragile as a butterflys wing can access life-changing services and supports now and so Debra can invest in EB research that can transform lives.
There are approximately 1,000 people in Ireland affected by Epidermolysis Bullosa (EB), an extremely painful and incurable skin condition. Of these, 300 live every day with skin that blisters and tears at the slightest touch, like a butterflys wing. Take action with us today and lets prove the power of the Butterfly Effect that seemingly small acts can create monumental change for everyone affected by EB in Ireland.
Please show your support and donate to my page today.
We might be a small charity but, make no mistake, our mission and our ambitions are colossal. We are here to tell Ireland and the world beyond its borders about Epidermolysis Bullosa. We are here to compel everyone to care and inspire everyone to act. We are here to be a positive force for all those living with EB and all those whose lives have been impacted by EB. To help in all kinds of everyday ways, to listen, support, empower and alleviate unimaginable pressures. We are here to lobby tho
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