I’m taking part in the Run to 40 Challenge so that everyone with skin as fragile as a butterfly’s wing can access life-changing services and supports now and so Debra can invest in EB research that can transform lives.
There are approximately 1,000 people in Ireland affected by Epidermolys...
I’m taking part in the Run to 40 Challenge so that everyone with skin as fragile as a butterfly’s wing can access life-changing services and supports now and so Debra can invest in EB research that can transform lives.
There are approximately 1,000 people in Ireland affected by Epidermolysis Bullosa (EB), an extremely painful and incurable skin condition. Of these, 300 live every day with skin that blisters and tears at the slightest touch, like a butterfly’s wing. Take action with me today and let’s prove the power of the Butterfly Effect – that seemingly small acts can create monumental change for everyone affected by EB in Ireland.
Please show your support and donate to my page today.
Debra - Irish Life Dublin Marathon For DEBRA Ireland
Words of support
Best of luck Edel
Good luck edel.
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Donation summary
Total raised:
€190
Offline donations
€0
Online donations
€190
About the Cause
DEBRA Ireland
We might be a small charity but, make no mistake, our mission and our ambitions are colossal.
We are here to tell Ireland and the world beyond its borders about Epidermolysis Bullosa. We are here to compel everyone to care and inspire everyone to act.
We are here to be a positive force for all those living with EB and all those whose lives have been impacted by EB. To help in all kinds of everyday ways, to listen, support, empower and alleviate unimaginable pressures.
We are here to lobby tho