My little niece Tess was diagnosed with EB and up until then I had never even heard of it. All I do know is that Tess and her family had their lives turned upside down and without the support of Debra Ireland i don’t know what they would have done. They provided answers to Tess’s pain and give support to her and the family helping them understand her diagnosis and giving her the tools to live a normal happy life!! She is a beautiful child inside and out and I would love any donation that people can give, as the work Debra do is just unbelievable and I hope doing this fundraiser can help give something back to the charity! 

Dee xx

I’m taking part in the Run to 40 Challenge so that everyone with skin as fragile as a butterfly’s wing can access life-changing services and supports now and so Debra can invest in EB research that can transform lives.
 
There are approximately 1,000 people in Ireland affected by Epidermolysis Bullosa (EB), an extremely painful and incurable skin condition. Of these, 300 live every day with skin that blisters and tears at the slightest touch, like a butterfly’s wing. Take action with me today and let’s prove the power of the Butterfly Effect – that seemingly small acts can create monumental change for everyone affected by EB in Ireland.
 
Please show your support and donate to my page today. 

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