This year to mark my big 4-0 birthday, I am taking part in the Dublin Marathon with the support of my dear friend Colin Farrell. 

We are going to take on this challenge together and share the pain.  Born with no skin on my left foot and right arm, causing excruciating blisters on my skin at the mildest touch – this is the reason it is called ‘Butterfly Skin’.

The doctors said it would be better for me not to make it, because my life would be so hard, No one expected me to survive for this long – because people with my type of EB almost never do – but I’ve always been encouraged to be a fighter.   

Reaching 40 shouldn’t be a miracle, but right now, it is.

I’m asking everyone to donate to my page, so everyone with EB in Ireland can live the longest, fullest life possible.

Read more about Debra - Irish Life Dublin Marathon