27th October 2024
ireland
Join Emma Fogarty’s Run to 40 and be part of a team with Colin Farrell to support everyone impacted by EB in Ireland
Walk, run, or roll 40 kilometres in your own way and fundraise so that everyone with skin as fragile as a butterfly’s wing can access life-changing services and supports now, while we invest in EB research that can transform lives.
Complete it all at once or break it into manageable chunks that fit your schedule. Wherever your live, whatever your fitness level, you can decide when and where you will complete your 40 kilometres. Every step, every kilometre, and every donation brings us closer to a cure and better quality of life for people with EB.
To help with your Run to 40 Fundraising please Click Here to download the Run to 40 poster and leaflet.
Best of luck to Gary O Callaghan in the upcoming Dublin City Marathon and indeed to all the runners in supporting this very worthwhile cause.
Best of luck to Emma and Colin
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We might be a small charity but, make no mistake, our mission and our ambitions are colossal. We are here to tell Ireland and the world beyond its borders about Epidermolysis Bullosa. We are here to compel everyone to care and inspire everyone to act. We are here to be a positive force for all those living with EB and all those whose lives have been impacted by EB. To help in all kinds of everyday ways, to listen, support, empower and alleviate unimaginable pressures. We are here to lobby tho
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