Angelman Syndrome Ireland
overview
- Create a supportive community for parents, caregivers and loved ones with Angelman Syndrome.
- Advocate on behalf of Angelman families through working with global charities, the HSE and NHS, research bodies and pharmas
- Promote research efforts in line with current international work to advance understanding and deliver treatments for people with Angelman Syndrome
where your money goes
Every day, 18 precious lives enter this world with Angelman Syndrome, a
genetic disorder that presents unique challenges and profound blessings. In
Ireland, our island is home to around 350 individuals living with this
condition.
Life with Angelman Syndrome is so difficult as understanding of the disease is limited with families often being the knowledge holder. Most of our children will never utter more
than a few words, their lives woven with mobility challenges or an inability to
walk. Debilitating seizures are all too common with a risk of death and so are
the sleepless nights with some children sleeping only 1-2 hours per night. Our angels
require continuous, 24/7 care throughout their entire lives—a never-ending
marathon of love and dedication.
But within these struggles lies an incredible strength: our children's
remarkable smiles and warm personalities. Their spirits radiate love, spreading
joy and teaching us all invaluable lessons in courage, empathy, and the power
of human connection.
At Angelman Syndrome Ireland, we strive to create a community of
parents—a vibrant tapestry of support for our children and the families that
love them. We aim to lighten the mental burden that comes with caring for a
child with severe disabilities, fostering a safe haven for shared experiences
and understanding.
Together, we can transform the landscape of care in Ireland,
collaborating with charities worldwide to establish a specialized clinic for
our angels. With your help, we can provide access to life-changing therapies
such as emerging genetic drugs, horse therapy for physio and assistive
technology like iPads for communication.
We envision a future brimming with hope, and we invite you to join us on
this incredible journey. Your generosity, no matter how big or small, will make
an immeasurable difference in the lives of our loved ones. Your contribution
empowers our angels to continue spreading love and joy, one beautiful smile at
a time.
Let's create a world where every person with Angelman Syndrome has the
support and care they deserve. Please donate today and become a part of our
extended family. THANK YOU for your kindness and compassion!